Lyme Disease: Missed and Misdiagnosed


We are experiencing an absolute epidemic of Lyme disease in the United States. Making things even worse is that many physicians don’t understand or deny that Lyme is so serious. It’s a tragedy.

Lyme disease was so-named because it was “discovered” in Lyme, Connecticut. It is most common in New England, up and down the east coast, and the Midwest. But other individuals with Lyme have lived in Texas, South America, Europe, and Asia.

When we speak of Lyme disease, we mean not only Borrelia, the name of the Lyme organism itself, but many co-infections that infected individuals also have. These co-infections include Babesia, Bartonella, Brucella, Chlamydia, Ehrlichia, Mycoplasma, Rocky Mountain Spotted Fever, Tularemia, and a variety of viruses. Lyme is contracted by being bitten from a tiny deer tick, a tick so small that you can barely see it. Some individuals who are bitten by the deer tick may find the tick on their body or see a “bulls-eye” rash, but most people don’t find the tick and don’t have a rash.

Infections with Borrelia and its co-infections brethren typically have a gradual onset, often with a flu-like illness. People can have unexplained fevers or hot and cold spells. Memory, planning, reading, brain processing, and judgment may be impaired. In severe cases it can literally become impossible to string together words to make a sentence. Fatigue and exhaustion are common. Sleep problems—often severe—are almost invariably present. Headaches are common. Infected people are often moody and irritable. Individuals may have gastrointestinal disturbances. Sensitivity to sounds is increased, so that people can feel assaulted by the world around them. Light sensitivity is common. Bell’s palsy can occur—a mild or not so mild—one-sided facial drooping. In fact, Bell’s palsy is always due to Lyme disease until proven otherwise. Infected individuals can have erratic blood pressure changes or life-threatening changes in heart electrical rhythms. Our experience, and that of others who are very familiar with Lyme, is that chronic fatigue syndrome and fibromyalgia are often caused by Lyme and co-infections.

The reality is that infection with Lyme and its co-infections can cause or contribute to virtually any medical, neurological, or psychiatric problems. We’ve seen Lyme mimic ADD, anxiety disorders, depression and bipolar disorder, OCD, and schizophrenia. Sometimes, but not all of the time, when we treat the underlying infections, we see all of these “psychiatric” problems melt away. Lyme is also likely involved with ALC (Lou Gehrig’s disease), multiple sclerosis, autism, and various forms of dementia, including Alzheimer’s disease.

How do you make a Lyme diagnosis?

Well, blood tests are fallible, so currently a diagnosis of Lyme is a clinical one. This is so important that it bears repeating: Lyme is a clinical diagnosis, made by a clinician with extensive experience with these infections. Individuals suspected of having Lyme should consult a “Lyme Literate Medical Doctor” (“LLMD”), typically a clinician who is a member of the leading organization for Lyme called ILADS (International Lyme and Associated Diseases Society,

A diagnosis of Lyme and co-infections is made by an LLMD who takes a detailed clinical history, does a thorough physical exam, and orders appropriate laboratory testing.

Laboratory testing for Lyme leaves much to be desired. Commonly-done testing by Quest or LabCorp, using the standard “Western Blot” testing, often gives a result that is a false-negative. That means that, if you get a negative result, you don’t know if you can trust it. Therefore, we commonly use specialty labs to try to diagnose Lyme such as IGeneX labs ( IGeneX focuses solely on Lyme and co-infections, so they’ve become very good at detecting these illnesses. Even IGeneX testing is not perfect, but it typically is much better than most other labs.

What many don’t understand, and why Lyme testing with most labs is often worse than useless—because it can be misleading—is that CDC (the United States Centers for Disease Control) criteria for Lyme are based on surveillance criteria, not criteria for actual clinical diagnosis. This is a complicated, complex, politically-charged issue. Suffice it to say that even many doctors don’t understand that the so-called CDC criteria, upon which most testing (but not IGeneX and other specialty labs) is based, are not useful for making an actual clinical diagnosis in a patient, because of their high false negative rate. This has confused many doctors, who are not aware of the nuances of this diagnostic issue, resulting in many infected patients being told that they do not have Lyme when they actually do. It’s a real disaster, one of the most confusing and contentious issues we’ve seen in my many years, resulting in missed diagnoses and misdiagnosis. Often, struggling individuals end up being told that they have a psychiatric disorder because their physicians cannot figure out what is wrong.

To make things even worse, physicians who are active in diagnosis and treating tick-borne infections like Lyme are being targeted by insurance companies and medical boards. Some have been forced out of medical practice and driven into bankruptcy. Their personal and professional lives have been ruined.

There Is Hope

Let us say that help is available for Lyme and other tick-borne infections and there is reason for hope. Infected people can get better. There are courageous clinicians who are willing to diagnose and treat these patients the right way. But you must take matters into your own hands. Research your condition. Seek out clinicians who have experience. Ask questions and then ask more questions. You need to have a doctor who will spend time with you. The initial visit with a LLMD typically lasts about three hours. Is your doctor spending three hours with you? Probably not. Find one who will, and you’ll likely get better. Never give up hope!

The first step in any healing process is an accurate diagnosis. If you or someone you know may be experiencing symptoms of Lyme disease, call us today at (888) 288-9834 or visit our website to schedule a visit and find out more about how we can help.

Dr. Joseph A. Annibali graduated magna cum laude from the University of Pennsylvania, where he was a Senatorial Scholar, and from which he received an Honors award for studies in Biological Chemistry. Dr. Annibali is the Chief Psychiatrist at Amen Clinics Washington DC.  Author of Reclaim Your Brain—How to Calm Your Thoughts, Heal Your Mind, and Bring Your Life Back Under Control.


  1. I was bitten in May and am still being treated for infection. I had a red bump from the bite, which developed a rash after 5 days. Later I got Bell’s palsy. I got sick almost immediately with fever, sweating, and the worst headaches I have ever had. Even though my doctor started me on doxycycline less than a week after the bite, I still developed neuroborreliosis, the infection is in my brain. Every test was negative, even the ones from igen experience. Luckily I have a llmd who is treating me for Lyme anyway. It is a horrible infection to have!

    Comment by Amy E Mitchell — September 9, 2016 @ 8:12 PM

  2. Autocorrect typo: that’s tests from igene x.

    Comment by Amy E Mitchell — September 9, 2016 @ 8:14 PM

  3. Can Lyme affect joints? I have all the symptoms listed as well as crackling joints all over my body. Anybody aware of a doctor in Utah who treats Lyme? I was tested years ago but the result was negative-

    Comment by dath7 — September 9, 2016 @ 8:38 PM

  4. My sister has ALS. I made a video about it,

    Comment by debabced — September 9, 2016 @ 9:58 PM

  5. Thank you for sharing this. Probably one of the most inclusive articles on Lymes Disease I have read. I was diagnosed in 2000 with Lymes by a Naturpath Doctor and back then most physicians, if they even acknowledged its existence, denied that anyone could have it if they hadn’t visited Connecticut! My reply was, “tell that to my symptoms”! We focused treatment using holistic, nutritional therapies and had great sucess.

    Comment by Wendy Guess — September 10, 2016 @ 6:03 AM

  6. A good Lyme Blog that is informatinal as well as an account of one’s personal experience through Lyme treatment is

    Comment by Gail Gravesntreter — September 10, 2016 @ 6:33 AM

  7. There are many ways to look at it…I feel that I was murdered, just as my Mother was with the J&J Talc, yet she will never see justice on her behalf… Me, It was, I thought simple, back in 08′ I got bit by a very very small tick, but unlike most I found the tick and also got the bullseye… I went to an Urgent Care Doctor, I figured(wrong) that they are “up to date” on all the guidelines, treatments, needs…right? This Doctor as soon as he came in looked at me and stood away, had the nurse do all his work…Told me to just wait 6 months if any issues they’d take care of me. I thought that was a bit odd, I asked if there was anything we could do to be “sure” or “proactive”. Told me to come back in 6 months or just deal with my primary doctor. I then pulled out the tick in a container..the Doctor screamed “what is that!!” and backed up and hit the wall. I asked can this be tested to see if it has Lyme, cuz it’s been on me for I figure at least two days? The Doctor said, I suppose if you want us to…??? I felt this all to be very strange behavior. Well, they tested it, but never got back to me, I found out at least a month later it was positive, I ran to my Prime Doctor, he gave 14 days of doxy and seemed to care less. Then months later, I got tons of symptoms, too many to list. I went back to this place(only place in my area and took insurance) went to many “specialists” they all just wanted to treat the symptoms and have me go away, no care as to what the “cause” was…like Lyme and Co-infections. I then learned of a LLMD, I found one hours away…I went…I emptied my savings account, but the treatments where helping. After 4yrs I was in better shape, not perfect, but enough to function with simple things, plus flat broke. I was doing ok with the protocals on my own, then just last year I got a tick again behind my vein behind my knee, yes I do tick searches, yes with mirrors, yes by feel, yes for 30 mins every day to be sure. Well, I missed this tiny tiny one on the side of my vein. How did I know? How did I find it? Simple, I unlike many got the rash and a slight itch…I right away went to an IDSA Doctor, cuz insurance will cover and by now they will do the right thing….WRONG!….This guy came in with attitude, I’m gonna call him “guy” he does not deserve the tittle Doctor…This guy asks me how I expect him to treat me…??? I said well, that seems simple, I’ve got the tick here, and the rash and I’ve learned a few things about Lyme from a LLMD Doctor in the past. I’m the patient and you are the Doctor right? Just want to be treated as a patient with Lyme. this guy asks me well how do I do that? I’m like perhaps follow the National Clearing House Guidelines…???…?? This guy asks me if I have a copy of the guidelines in the med papers I brought with me…really?…I said yes I do, here they are…When he saw them he REFUSED to treat me per the Guidelines. He said he would only give me 21 days of Doxy and won’t be needing to see me again. I pointed and showed him the new Guidelines, he did not care…said go back to your LLMD, I said I can’t, I can’t afford him. This guy was like, that’s no my problem it’s yours. At the end of his so called 21 day Doxy with too little dose…I got severe Lyme Bells Palsy, I went back, due to the IDSA Doctor won’t see me, I was in Urgent care, they had fun doing all sorts of tests to rack up the insurance bill… all did NOTHING for me…The Doctor there felt sorry for me, gave me another 21 days at again too low a dose….These Doctors do NOT FOLLOW THEIR OATH…or the NEW GUIDELINES and insurance does not pick up if it’s chronic Lyme that “they” created by having me suffer….and perhaps soon die…… that not premediated murder? or is that undermedicated murder? This article is a VERY good article…it say’s alot……but what about the Millions of VICTIMS of Lyme+ with the same story or just as close to mine!!!!!????? I’ve gone to 30 some lawyers, and I’m not the sue type, they all felt bad for me, but said it’s too hard of a case for them, they don’t understand Lyme and it sounds too politcal…meanwhile I suffer bad each day…These Doctors are not even following protocal…they are not even within their OATH to a patient. If I’m to get better, the sad truth is, I need the money, so I can go back to the LLMD, so that I can be treated properly by a Doctor who takes his/her OATH seriously. Will this article STOP and help the millions like me? Will it prevent the numbers that CDC admits…close to a 1000 each week, each year WILL BECOME INFECTED!

    Comment by Cash Johnny — September 10, 2016 @ 6:36 AM

  8. Yes Lyme itself can affect joints, normally the pain or such will jump from one place to another. However, I do not know your history of meds you may have taken for what…but any antibotics in the floride family such as Leviquin and Cipro….can damage and effect muscles and joints and the such, so be sure to check out why they black boxed that med…yet Doctors give it out like candy! Let me be clear, this info I mentioned is my personal experience…I’m not a Doctor. If you are in Utah, there may be a few ILADS….llmd doctors you can find, good luck to you ….negative and positive tests really mean nothing till “they” get some real accurate tests made. there is one but the FDA is holding it back due to Big Parm and greed…a woman by the name of Douglas is said to have a fool-proof test and it uses your urine!!! but then again, this is only my view from what I see happenin’ as a Lyme+ Victim.

    Comment by Cash Johnny — September 10, 2016 @ 6:43 AM

  9. Yes it is Amy, and I’m glad you have a LLMD…….keep at it….and my best to you

    Comment by Cash Johnny — September 10, 2016 @ 6:44 AM

  10. Thank you for sharing this video. It has a lot of technical information. For a layperson diagnosed with ALS but who may actually have lyme, what is the take-home message for treatment? thanks!

    Comment by Overcoming Lyme — September 10, 2016 @ 7:01 AM

  11. You can find a Lyme literate physician here:

    Comment by Amen Clinics — September 10, 2016 @ 7:54 AM

  12. I work for the Forest Service in Southwest Oregon. A few years ago, I lost a close friend and co-worker to Lyme. She suffered and deteriorated for about 8 or 9 years with several misdiagnoses, including Fibromyalgia, until she was completely bedridden and required a stomach tube. She died at only 52 years of age leaving a 10 year old daughter. The worst part was that Gail was sure she had Lyme and knew when she got it but her doctors would not believe her because the test came back negative. Finally at great effort and expense she traveled to another doctor in California who, with more lab tests confirmed she was correct and her problems had been due to Lyme the whole time. They started her on the right treatment but by then it was too late.

    Comment by Brenda Tippin — September 10, 2016 @ 7:56 AM

  13. I don’t know. I’ve seen so many die in the past year of “ALS” that had either tests for lyme co-infections, history of tick bites that do not test positive and basically no access to help or health services because they have “ALS.” An ALS progression lyme disease kills faster then people can figure out what do do to help.

    Comment by debabced — September 10, 2016 @ 11:49 AM

  14. Even though the article says this is most common on the East coast, I live as far West as you can go without falling into the Pacific Ocean – Where the redwoods are – and we have an epidemic of Lyme and all its accompanying co-infections. I’m told that it’s because we have way too many deer. However, I moved here from Sacramento, a city of paved streets, short grass, and virtually no deer, and I had the disease when I left there. Go figure. I never laid eyes on a tick of any description. Naturally it was not diagnosed until I was very sick, could not even remember the word for simple things like “door”. I was very afraid I had Alzheimer’s. I had already had to retire and go on SSDI because I could no longer perform my very complex job. While I did stumble upon a wonderful holistic doctor and received two full summers of IV antibiotic treatment so I can again carry on a conversation and read a book, I am far from cured, and my life has been destroyed. No one understands what I have gone through and continue to suffer. Now all my joints are going, from my thumbs to my ankles, and most of those in between, even though I’m not overweight and have never done heavy work or the kind of activities that usually cause those problems. This is a very good article, but I sure wish someone would develop a real cure for those of us who didn’t get the early warning signs Once the disease is chronic, we’re screwed.

    Comment by seagazer101 — September 10, 2016 @ 1:44 PM

  15. I’d love to hear what therapies those were.

    Comment by seagazer101 — September 10, 2016 @ 1:46 PM

  16. Get tested again at the lab in Palo Alto, CA. igene x

    Comment by seagazer101 — September 10, 2016 @ 1:49 PM

  17. Yes, there is hope! Glad to hear your daughter is doing better. I recall a presentation you gave at ILADS a few years back where you discussed how Lyme caused inflammation in her brain- it made an impact. I hope her progress continues.

    Comment by LymeCoaching — September 10, 2016 @ 5:57 PM

  18. Does Amen Clinics treat lyme, or just the psychological effects that come along with it?

    I wish more doctors had the insight into lyme and it’s many coinfections that Dr. Annibali seems to have based on his many posts regarding it.

    How do we get the IDSA, CDC, insurance companies and even doctors to wake up and take seriously this epidemic that is unfolding before our eyes.

    We have to do something. Even treated lyme can cause a lifetime of other issues if not treated promptly and effectively.

    Is Amen Clinics offering treatment for lyme disease?

    Comment by Kenneth P. — September 14, 2016 @ 9:05 AM

  19. I’m in the same boat as you. It’s so hard.

    Comment by skeeter1 — September 14, 2016 @ 1:31 PM

  20. I agree,totally. Who’s out here to help us??? Especially those of us who can no longer hold a job. And can’t get disability

    Comment by skeeter1 — September 14, 2016 @ 1:36 PM

  21. Sure, the main activities that worked for me included consuming more alkaline foods, colloidal silver., and Transfer Factor. Since then, emotional/energetic therapies have been a tremendous benefit. What therapies have you heard about? Best wishes.

    Comment by Wendy Guess — September 17, 2016 @ 7:30 AM

  22. I am having a real hard time with the cdc and traditional doctors / hospitals rejecting diagnosis from Igenix and biophysicists who have shown beyond doubt the existence of Babisia and Borrelia active and hiding in bio films in both of my children.
    We have actual footage of their cells as they die off and the spirochete emerges ,looking for a new host.

    What more do they need? We have spent thousands and thousands of dollars trying to heal our incredible children who have been misdiagnosed over 11 years .

    They should be out enjoying this wonderful life , now they are trying to work to pay for medical bills ! Living at home, as there peers are out starting careers and saving money for their futures.

    Sorry for rambling , but my heart is broken .

    Comment by Laura Oviatt — September 28, 2016 @ 7:34 AM

  23. Your story is like a textbook ! We have gone through the same ordeal . For years doctors had me convinced that my child was crazy, anxious , depressed, add …ect. I will never recover from the guilt I feel for not trusting my own child. It was not until her body totally broke down and she was fainting ,loosing balance , sweating profusely , having Bells Palsy as she was driving her car down her entire left side, going from a college athlete to not being able to lift her arms or legs without severe pain, ….well the list goes on…. I just don’t understand why insurance company’s don’t help and traditional Doctors won’t acknowledge , they will actually laughing your face and role their eyes. I have never been a violent person,and I hate confrontation , but I have never wanted to choke someone so badly in my life! Sorry,.

    We have been fortunate enough to be able to afford to find treatment ,
    Which is helping ,slowly but surely . It is costing us our savings , but we are finally able to see the life come back into our child’s eyes. Worth every penny we have.

    Their has to be some way to lobby this , there are so may of us out there . The ones infected are to broken to fight , it’s the family and friends that are going to have to lead the charge

    Comment by Laura Oviatt — September 28, 2016 @ 7:58 AM

  24. I didn’t delete my video… I have seen at least a dozen more with ALS test positive for lyme disease since this post. One thing that I have to say is I nailed it in identifying a huge problem with autoimmunity through complement with factor h and C4.

    I didn’t identify what the problem was in my video only that C4 and factor h were important, but I am pretty sure that one day my idea that you have to look at microbes through “complement eyes” and their overlapping evasion strategies will be at the forefront in what is taught in medical school and how they can collectively cripple complement. In the past month there is a fantastic paper on silent removal of dead cells, You need C4BP and factor h to regulate silent removal, so all of these microbes that I identified with factor h and C4 evasion strategies are totally destroying the body’s ability to regulate this process.

    Dr Blom’s work is exceptional, unfortunately the study of complement as an important body system for evaluation in disease is still in its infancy. I asked a new doctor how much he knew about complement and he really only knew about it, and no idea how to use it or how important integrating an understanding of it into his practice would enable him to give superior support to his patients.

    I am going to lunch with my biology professor from 30 years ago and I specifically asked how much the study of complement has moved forward in education as I was the top of my class in human biology and I swore I’d never heard of it. I went back and checked my text and it was just referred to a process the body uses to fight microbes in two lines of text in a book with over 1000 pages.

    So, how this paper translates into good health care practice is to identify various microbes that have factor h and C4BP evasion strategies. I think there is now a DNA panel test for a microbes that can show up in fibromyalga, and if I remember correctly, they have these evasion strategies.

    I just started to listen to an interview with Dr Gundry and lectin avoidance as this is probably also a piece of the healing solution. Dr Gundry was doing work with cross animal transplants to study autoimmunity and his knowledge from that kind of work is amazing. He talks about LPS of which there are bacterial kinds, and I suspect when the bacterial kinds are from bacterial that have these evasion strategies, the body is becoming overwhelmed in how to handle the problems.

    Comment by debabced — December 1, 2016 @ 5:05 PM

  25. Leviquin has teleomere shorting properties which can be fatal. I study through the effects on the body with ALS and there is efficacy to improving lifespan with “stuff” that lengthens teleomeres. Some poor girl altered me to this enormously dangerous issue by asking who had tried Leviquin and she story was that her father had a non life threatening infection and was put on Leviquin and died 6 days later, but talked about how worse he was feeling as soon as he started taking the antibiotic. Teleomere lengthening is associated with living longer so Leviquin really seems like something to avoid.

    Comment by debabced — December 1, 2016 @ 5:13 PM

  26. My deleted video was dedicated to a woman who had gone to a lyme literate doctor with an ALS disease progression and it was the blood issues that killed her. She got back a huge amount of limb function from being on an antimalaria drug. I believe the babeosis, like malaria, is a blood pathogen. I think Dr Amen’s “brain and body power max” is one of the best nutritional supports to support the body to fight back, but I tend to think that if you developed neuroborreliosis you are dealing with co-infections and they can be blood and/or gut bad microbes. This is an excellent paper on how lyme messes up complement, de Taeye, Steven W., et al. “Complement evasion by Borrelia burgdorferi: it takes three to tango.” Trends in parasitology 29.3 (2013): 119-128. Notice it is in a journal called parasitology. I think people are suffering more because of inadequate attention to parasitic infection.

    Comment by debabced — December 1, 2016 @ 5:31 PM

  27. I’ve had it 3 times while surveying in NW Wisconsin. Doxycycline cleared it up before the worst of the symptoms set in. I’d always check my entire body for the bullseye rash, then immediately saw my doctor who immediately prescribed the treatment. It is very common in this region. We’d pull hundreds of ticks in a week.

    Comment by Randy Umbs — May 8, 2017 @ 12:01 PM

  28. A common mistake but please be aware it is Lyme (no S) Disease. I cringe when I hear doctors mispronouncing it.

    Comment by arco — May 8, 2017 @ 12:19 PM

  29. A great booklet for info on Lyme and it’s associated diseases go to Download the green “lyme basic” booklet.
    Another info site is (the international lyme and associated diseases society) The education page has numerous articles..

    Comment by arco — May 8, 2017 @ 12:25 PM

  30. Google: “Consumer Health Donald Scott June 2000 Chemtrails and the new Mycotoxins.” This is why sufferers including myself are unable to get a diagnosis. In addition, YouTube Dr. Garth Nicolson’s presentations. It took me a few years of literally fighting for my life alone to discover what I have. Best to all.

    Comment by Carrie Toponce — May 8, 2017 @ 5:16 PM

  31. Yes! I detoxed as well using Dr. Hulda Clark’s protocol and her book, A Cure for all Diseases.

    Comment by Carrie Toponce — May 8, 2017 @ 5:19 PM

  32. You can buy doxycycline from MedsMex in Mexico and treat yourself. I know this is politically incorrect, but it is legal. Best if you can find a doctor because you probably need a multi antibiotic protocol and testing for coinfections, but I know how hard it can be. When you’re out of money, that’s it when these doctors and labs won’t take insurance.

    Comment by Amy E Mitchell — May 8, 2017 @ 9:09 PM

  33. Thank. You. This is my current status. Finally, someone understands. Finally.

    Comment by Tanya Dixon — May 13, 2017 @ 9:06 AM

  34. Great article, but PLEASE spread the truth that it is not ONLY spread by tics! It is spread by ALL biting insects such as mosquitos, fleas, mites, bed bugs, biting flies…and more! It is also spread to unborn babies by infected mom…blood transfusions and possibly sex!

    Comment by Cathy Hoag — May 13, 2017 @ 9:52 AM

  35. That’s because people are so focused on tics:( I got it from mosquitos! ANY biting insect can transmit it…possibly even sexually transmitted!

    Comment by Cathy Hoag — May 13, 2017 @ 9:58 AM

  36. Hi Cathy,

    The spread by other insect vectors is highly likely but poorly documented. Borrelia, for instance, has been found in mosquitos and other biting insects as well, but the transmissibility is less well known and probably a different disease process if you get Lyme from another insect. It turns out that the tick saliva plays a role in the infection process and is actually signal to the spirochete, as ticks are still the main life cycle host.

    The maternal-fetal transfer has been documented, as well as sexual transmission between couples, although the latter remains controversial.

    Comment by Amen Clinics — May 15, 2017 @ 11:13 AM

  37. It goes way beyond Lyme. Lyme is caused (mainly) by one kind of spirochete, but there are more than 30 species, and at least 6 species have been found in brain autopsies. Spirochetes are usually transmitted by insect bites, but can probably even be transmitted by kissing as several species live in otherwise healthy mouths. Dogs can be carriers and flea or mosquito bites are even more problematic than ticks. If you have worries about Lyme misdiagnosis research “spirochetes”.
    Early references in medical literature, including Alzheimer’s research, go back a century. An excellent meta-analysis paper was published in 2011. See . Several advanced papers have been published in 2014/5/6.
    I’m amazed that Amen Clinics seem to have missed the boat on this one. Time to catch up!

    Comment by Murray Duffin — May 17, 2017 @ 10:37 AM

  38. My husband went through the dramatic season of being rejected and denied any treatment for Lyme. To make a long ordeal/story very short, he is now back to work, feeling healed, and convinced that OXYGEN HYPERBARIC treatments is the reason. He had 40 sessions which last 1-1 and 1/2 hours each – an independent clinic just opened in our city and we were introduced by a trusted friend and prayer partner. Highly recommend.

    Comment by caryn southerland — October 6, 2017 @ 7:15 AM

  39. Yes, they do. See Dr. Mark Filidei. I am receiving treatment after being referred by my functional medical doctor. Dr. Filidei had tests performed and diagnosed me with lyme co-infections.

    Comment by medicinewomon — November 29, 2017 @ 3:14 PM

  40. Dr Anaboli, have you spoken with Dietrich Klinghardt, MD? He has clinics in WA & CA, & has long spoken of using bee venom therapy to help heal Lyme Disease. He writes, ” Recent research proved that one of the peptides in bee venom, melittin, has a strong inhibitory effect on the Lyme spirochete at very low doses (“Bee Stings as Lyme Inhibitor” by L. L. Lubke and C. F. Garon, J. Clin. Infect. Diseases, July 1997, 25 Suppl. 1, pp. 48-51). When the spirochete is inhibited it does not multiply and is vulnerable to the host’s own immune system and to medication. ”

    Comment by A Christine — April 11, 2018 @ 8:15 AM

  41. Has anyone used or heard of the Lyra Nara treatment protocol?

    Comment by Margaret Deeble — April 1, 2019 @ 3:53 AM

  42. Find a good homeopath, one who is experienced with the Banerji protocols or combination remedies is best. Search the internet or contact a homeopathic pharmacy to get recommendations. We rescued a dog who had at least 50 ticks on her and was starting to show symptoms of lyme with back end weakness/paralysis. Gave her the recommend remedy and in 3 doses she was symptom free. Homeopathy is known for curing the impossible to cure. It had a 100% prevention and cure rate in the European outbreak in Europe by 2 MDs who exclusively used homeopathy. Now you know why the pharma poison medicine machine is out to destroy it.

    Comment by Dee — December 4, 2019 @ 2:05 PM

  43. I decreased symptoms by using live bee venom therapy. There are fb pages with protocol. It’s not for everyone tho

    Comment by Grace Madden — January 24, 2020 @ 3:29 AM

  44. Hello…..about 25 years ago or better the testing for Lyme with mainstream medical was terrible and now they still seem to not get it right.BUT I am here to tell you that the best and fast way to tell if you have Lyme is through muscle testing.
    They can tell if you have Lyme or not and the test can tell you what co-infections you also have.A lot of things that mainstream medical does is outdated methodology….!!!

    Comment by John Szewczyk — January 24, 2020 @ 4:29 AM

  45. Lyme Disease is being used as a catch all diagnosis for those people who Conventional and Alternative Medicine (LLMD)have no real way of explaining the symptoms of many people who live with this chronic condition. Chronic Lyme is not caused by a tick bite. It is caused by the chemicals we are exposed to ( neurotoxins) that erode our immune and nervous systems over years after exposure to these toxins. We don’t know that we are bombarded with toxic medicines and chemicals in our environment. They act slowly on these two bodily systems and create most of the problems that “lyme” disease patients experience. How do I know this? I’ve been tagged with the diagnosis but my story involves an exposure to a neurotoxin chemical many years ago. Really we need to wake up to this and stop blaming a tick. This is not to say that someone can’t have an acute reaction to a tick bite, bulls eye rash, etc. This is not what I am talking about. I am talking about the vast number of people I have met on this journey who have a story that isn’t I got bit by a tick” and then I got sick. It’s usually uncovered unknowingly in conversation that they had some type of environmental exposure to chemical toxins. Our bodies are just reacting to this after years of persisting in our cells. Please take note LLMD’s and Practitioners. You want to help, but you must learn how to help people rid the body of these persistent chemicals. Let’s focus on clearing these toxins and rebuilding the cells. Stop the “tick bite” narrative.

    Comment by Carrie — January 24, 2020 @ 6:10 AM

  46. Let’s look into the root cause of “Lyme” and ALS. These are just symptoms of neurotoxicity. The immune system fails and the neurological system fails. ALS is a problem with neurons dying off… It’s not caused by a tick bite, but by chemicals disrupting the function of the immune system and neuronal death.

    Comment by Carrie — January 24, 2020 @ 6:23 AM

  47. I agree with you Carrie –
    I also had a bite from a tick….. God designed our bodies to heal themselves, that includes our immune system…..but you have to CHOOSE to take care of yourself.
    Take the necessary precautions when in tick infested areas.
    Your health and healing depends on it.

    Comment by Jenny — January 24, 2020 @ 7:45 AM

  48. Fenbendazole or Mebendazole?

    Comment by marq — January 24, 2020 @ 8:53 AM

  49. I believe Dr. Annibali passed away in May 2018. Has anything new about Lyme treatment occurred since he passed?

    Comment by Barry Stern — January 25, 2020 @ 6:39 AM

  50. did amen test you for lyme and lyme co infections? i had an LLMD diagnose me clinically which took a year of going to several doctors. amen took one lyme test, one babesia test ( at my request) and both came back with 3 bands each, which in the LLMD world means its still active. amen received the full files from my LLMD which details the year of clinical and diagnostics resulting in chronic lyme. i got bitten in 2010, diagnosed in 2015. this was my main reason for going to amen. dr. faber at amen completely ignored those facts, tested me through igenex, stated it was negative, then refused to speak about it or help. he did not ever refer me or make an appointment with their non existent LLMD to read through my records which state from at least three doctors that i have chronic lyme and co infections and very seriously ill. i am so disappointed in amen , words cant express. amen’s website specifically states that they have specially trained LLMDS. if that were the case, that LLMD would have read through my file from my LLMD and see that she did not test me for but one co infections. meanwhile, ive been telling dr. faber these things anx i get a curt, different answer than the website guarantees. after the initial cycle through amen, i kept the service with dr. faber and have been paying the $200 for that and nothing has moved forward. my important and serious health questions seem to be answered by an assistant with absolutely no reason why, no explanation and worst of all, no solution. also, i was told by two doctors outside of amen to be tested for MS and asked dr Faber to check my scans for plaques and he said while spect scans don’t show it, he can see a possibility that there are some in my brain! isnt this something amen should have ruled out? the only referrals amen will give are doctors in their network and none take insurance. im very disappointed with amen. ive had chronic ptsd for over 20 years and dr faber has decided that i don’t have it. i think either the whole of amen or maybe its just the encino branch is like a factory. they want you to get in and out as fast as possible and even when you pay extra afterwards, not much effort is put in to your case.

    Comment by Jennifer blumstrom — January 26, 2020 @ 10:27 AM

  51. Note** Lyme has been found in all 50 states. Veterinarians know this. I’ve been sick with Lyme for 20 years and unfortunately did horrible on antibiotics and malaria meds and I went to an LLMD, too. I’m pretty low functioning and have run out of money for medical bills beyond what SS Disability does to help me buy much needed supplements. It totally derailed my life 20 years ago, but it did take doctors 8 years to finally correctly diagnose me which really did not help. Prayers for everyone with Lyme.

    Comment by Anne Davis — January 26, 2020 @ 12:45 PM

  52. Check out WIN HOF METHOD

    Comment by Lisa — January 26, 2020 @ 6:25 PM

  53. I wish your statement was true. I have bergdorferi bacteria. This is Lyme disease. It currently has taken over my T cells which control my immune system.

    Comment by Beth — January 26, 2020 @ 7:04 PM

  54. Lyme is a spirochete, just like the spirochete that causes syphilis. “Yes, syphilis is absolutely curable. Antibiotics are prescribed to treat syphilis because the causative agent is a bacterium. Treatment may vary according to the different phases of the disease. Broadly speaking, a single dose of penicillin G is the first option of treatment for early infections.” So, my question: Why isn’t penicillin G used for Lyme? My answer: not profitable.

    Comment by Paul Mammen — January 27, 2020 @ 10:26 AM

  55. Check the West Clinic, Pocatello Idaho.
    These people kept me from checking all the way out! I recommend these people, they’ve helped many people with this scourge.

    Comment by Tim — February 26, 2020 @ 7:30 AM

  56. I was diagnosed with Lyme disease 5 years ago and was taking Antibiotics and Nonsteroidal anti-Inflammatory drug which seemed to help. However, I still suffer from some of the symptoms. My symptoms have always been chronic fatigue, joint pain, and even neurological problems in controlling hand and leg movements. I am a 54 year old female. the Antibiotics wasn’t really working and I could not tolerate them for long due to severe side effects, There has been little if any progress in finding a cure or reliable treatment. Acupuncture eased my anxiety a bit. Our primary physician recommended me to kycuyu health clinic and their amazing Lyme treatment. My symptoms including chronic fatigue, joint pain and rash, disappeared after 4 months treatment! The herbal treatment is a sensation.. My Lyme disease is totally reversed! this is a herbal store that will be leaving it’s footprint in this world. I’m 54 and have never been this healthier

    Comment by Sharon Douglas — December 21, 2021 @ 11:50 PM

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